Hereditary polycystic kidney disease (PKD) ran in Robin Tobler’s family. Robin, her mother, and four of her siblings were all diagnosed with it.
Robin wanted to do anything she could to try to help researchers understand this disease better and try to find ways to delay the onset of kidney failure.
For almost five years, she participated in the HALT PKD study out of University of Colorado, Denver. Researchers would provide her with roundtrip tickets from California, perform routine tests and keep her overnight to meet with the doctor or nurse practitioner working on the study.
As a result of this study, Robin is the only one of her siblings with the disease who did not need to go on dialysis. Participating in the research study helped slow the progress of her disease.
For Robin and countless other like her, The National Kidney Foundation (NKF) is a lifeline. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health.
Mission:
The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney disease, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of kidneys for transplantation.
Vision:
To enhance the lives of everyone with, at risk of or affected by kidney disease.
Impact:
The NKF works to achieve their mission by:
- Raising awareness about kidney disease, treatment and donation options, and offering lifestyle advice
- Funding research into groundbreaking new treatments
- Providing support to patients suffering from kidney disease in the form of a free information helpline, peer mentoring, and community support
- Advocacy and lobbying
Relentless in their work, NKF enhances lives through action, education, and accelerating change.
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